West Cork Dyspraxia Support Group formed

Posted on: 5th October, 2015

Category: Health & Lifestyle

Contributor: West Cork People

DCD (Dyspraxia) Definition Dyspraxia is a common disorder affecting fine or gross motor coordination in children and adults. This lifelong condition is also known as Developmental Coordination Disorder (DCD), a condition, which is formally recognised by international organisations including the World Health Organisation.

The West Cork Dyspraxia Support Group was set up recently by two West Cork parents with assistance from Dyspraxia Ireland – Colette Crowley, a parent of a child with Dyspraxia and also Jasper Hampton, a parent of a young adult with Dyspraxia. Jasper also has Dyspraxia himself. The group meet on a monthly basis in Clonakilty.

There is a very low awareness amongst the medical profession in relation to Dyspraxia – it is very difficult to get an assessment unless you ‘go private’ and if not spotted in time, intellectually capable children may leave school without qualifications.

A person with (DCD) Dyspraxia may have difficulties with movement and coordination including large movements such as walking and balance; and fine motor skills such as writing and using a sticky tape dispenser.

Difficulties with speech and language may also present. He or she may talk slowly and ponderously, repeat him or herself or have difficulty with pronunciation.

Visual problems may include difficulties tracking text when reading or looking quickly at information. There may also be difficulties with focus and coordination of the eyes.

People with dyspraxia may find organisation, memory, sequencing, concentration and time management to be areas that require additional effort.

They may have heightened sensitivity to sound, light, touch or certain fabrics. People may find it difficult to cope in a noisy environment or to work in brightly lit areas.

When a family faces a diagnosis of a developmental, physical or behavioural challenge, it may produce a sense of loss, fear, anger isolation, and/or frustration.

These challenges also present parents with an opportunity to respond with solutions, assistance and interventions which will meet the needs of their child and family, the needs of other parents/families, and the needs of the community serving their families. One of the most effective responses in providing support and developing coping skills, has been the creation of Dyspraxia parent support groups. Parents raising children with  challenges often have special concerns.

The West Cork  parent support group is generally a group of other parents who share this experience and meet on a regular basis. “We can serve many purposes,” explains Jasper “but primarily we offer parents a means to meet other families with similar needs, share information, and personal experiences with the goal of supporting each other.

The West Cork Dyspraxia Support group has been set up to support parents, children, teens and adults affected by the condition.

“An important function of our parent groups is to introduce parents to others like themselves,” says Jasper. “When families with similar concerns meet, there is a sense of community, of understanding. By creating a social network of friendships and activities, parents provide non-threatening, supportive settings where families relax and have fun and where their child’s Dyspraxia/DCD is not perceived as a barrier to reaching their full potential and enjoying life to the full.”

Many people with Dyspraxia are not aware of the conditions, let alone that they have it. They may have got themselves into a pattern (consciously or unconsciously) of masking and over compensating for their difficulties from birth. Many were bullied.

Please contact Jasper or Colette or Dyspraxia Ireland for more information. Dyspraxia Ireland: email info@dyspraxiaireland.ie; Jasper: email jasperhampton@gmail.com; Colette: email colcrowley.cc@gmail.com.

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